My Approach to Emotions and M.E./CFS

This is an issue very close to my heart, given I'm planning on working in this field once fully qualified.  I know that this may seem like a bit of a controversial topic...how can emotions affect my CFS? This isn't all mental..I'm in physical pain, I'm tired, I have brain fog all the time..what the hell does emotions have to do with all this??

Firstly, I absolutely agree that M.E/CFS is a physical illness, I have blood tests to prove it! However, I feel that focusing on purely the physical side really limits our scope in relation to recovery.  Think about it..if this condition was purely physical, all we'd need to do was rest and our body would be able to fully recover itself.  Also, if it was purely physical, GET (Graded Exercise Therapy) on its own would cure everyone.  However, this rarely seems to be the case.  Don't get me wrong, rest and graded exercise (at the right stage of recovery!) can be really supportive in overall recovery, but on their own, don't generally get us well.  

I'm an advocate of a more integrative approach to health.  Having listened to, read about, and seen so many recovery stories, I've noticed one common thread that runs through virtually all of them - they integrated their approach to getting fully well, harnessing not just the physical side, but also the mental side.  

It's absolutely normal to experience strong emotions when we are ill.  We can lose much of our independence, our friends, our jobs....in effect, much of our livelihood.  The constant worrying about this, and most prominently our symptoms, can exhaust us and really vamp up our nervous system (anyone familiar with that Tired but Wired feeling?)  

Tired but Wired

Often the most painful thing can be resisting these emotions and thoughts, because resisting them can often be more scary than just accepting them and honouring them.  In addition to this, the resistance of these emotions can also be a drain on our already limited energy sources, which in effect can compound us to more symptoms, more panic, and more exhaustion.  

I'm not going to go into too much depth about what has helped me on my healing journey on the emotional side, as that is beyond the scope of this post and something I could talk about for weeks...literally!! What I will do is talk you through a few things that have helped free up some energy for me by working with my emotions and thoughts.  By the way, this isn't mainstream, it's considered 'alternative' by Western Medicine, but for every 95 out of a hundred recoveries, their approach has been alternative.  

1)  STOP RESISTING SYMPTOMS - by resisting symptoms we're using a hell of a lot of energy. Often more energy than going for a walk.  Think about a time you've been lying in bed for days and are feeling no better than when you first got under the covers.  Chances are that you're running loads of anxiety patterns about when you'll get better, whether you'll be able to see your friend tomorrow, why you aren't improving etc.  This is really stressful on your system, and is what someone I know refers to as 'horizontal stress!' 

I must say I needed help with this - by going to see a specialised M.E./CFS Psychology Practitioner.  They helped me identify what patterns I was running about my symptoms, and gave me tools to change them.  Much calmed down since then!  Click here for the clinic I visited. 

2.1) DEEP BREATHING TECHNIQUES - this may sound really simple, but it's really quite effective.  It won't make your symptoms go away, but it will really help you tune in more accurately to your body's messages. Accept these messages as useful feedback and try and heed them, you're body won't give you false information, it doesn't have an ego!

If I've learnt anything from going through this process, it's the importance of listening to the body and following what the body wants rather than what the mind wants! Deep breathing massively helps with this.  Click here for a useful breathing handout. 

NOTE : Deep breathing may also cause emotions to arise.  That's ok, just allow them to just be there, they're not trying to hurt you. Avoid resisting them, as this will drain your energy.

2.2) YOGA & MEDITATION - we get our benefit from Yoga through gentle stretching of the muscles, but mostly importantly, the deep-breathing we attain whilst doing it. The same applies for meditation.  This is vitally important, as deep-breathing oxygenises our cells, helps detox the body, and nourishes the soul (for any Spiritual readers out there!)

3) REACHING OUT AND RECEIVING SUPPORT - this can be anything from talking about your feelings with a friend or family member.  What I found more effective was seeking the help of a therapist (ideally one who specialises in treating M.E/CFS sufferers.)  Yes, I've seen a therapist, and there's nothing wrong with that!! I needed help where I was at, and that help gave me new perspectives on things, along with helping me process some undigested childhood traumas, which once processed, took me another step forward on my recovery process.  

I avoided taking the CBT (Cognitive Behavioural Therapy) route.  I instead chose to trust my intuition, and find someone who specialised in NLP (Neuro-Linguistic Programming), Hypnotherapy, and EFT (Emotional Freedom Technique.) This really helped me identify and work with some of my deeper underlying patterns which were keeping me in this constant fear, fight-or-flight mode.  Emotional Freedom Technique was particularly powerful, especially with pain, and is now commonly used with Fibromyalgia patients.  These modalities have inspired and helped me so much, that I'm now actively qualifying in all of them.  You generally feel energised after a session, and it's something you can do on yourself whenever you need! I would recommend EFT to anyone with M.E./CFS (and trust me, I've tried a lot of other stuff!) but I'd encourage you to explore how you feel about this intuitively.  Trust your gut instinct!

4) COACHING - being our own best coach, supporting ourselves whenever we need to. This is so important, especially when we're experiencing sadness, anxiety, or any related emotions.  It keeps us motivated on our path to health and wellness, and has a wonderfully grounding quality to it.  Ask yourself, "How would I treat a 3 year old child?" Hopefully with love and care! Maybe it's time we treated ourselves like this..we're usually so hard on ourselves! You're going through a really tough time right now, it's time to cut yourself some slack!

5) GET INSPIRED! - a great way to lighten your emotional load is by reading inspiring stories by those who have faced adversity and come through the other side.  There are now A LOT of published CFS recovery stories out there! I used these to fuel my belief in recovery, as well as to gain valuable info on how to recover.  There are loads of cancer recovery stories out there too, which follow similar patterns.  Reading these made me feel a hell of a lot better about my situation at that particular time! One I would recommend is written by a now friend of mine, Alex Howard, which can be purchased on Amazon here. A hugely inspiring and deeply personal account of his 7 year journey from M.E. to full recovery.  

I really hope anyone reading this finds it helpful and not too contentious!! It's just a description of the things I've used on the cognitive side which have hugely supported my physical wellbeing.  Simply put, I wouldn't have got to this point without using these tools :-)


Adam
x

@cantfailwithkale

What is Mindfulness Based Stress Reduction and Can it Aid the Way I Deal with Stress?

“You cannot solve a problem with the same level of mind that created it.” Albert Einstein. 

I think it's true that a short burst of stress or pressure can help us rise to an immediate challenge.  Many thousands of years ago, when our ancestors were Cavemen, and needed to chase down a Wooly Mammoth, this fight-or-flight response was an incredibly useful evolutionary trait to have in our toolbox.  However, that's what the Fight-or-Flight response was designed for...a short burst of Adrenaline and Cortisol that would get us somewhere in a very short space of time.  

However, in today's world this Fight-or-Flight response seems to be turned on all the time, causing us various symptoms, including anger and anxiety, difficulty sleeping, loss of appetite, breathlessness and chest pains. People who are under prolonged stress are at greater risk of health problems like high blood pressure and heart attacks.  It's no coincidence that most heart attacks occur at 9AM on Monday morning!

Something has to be found to stop this, or at least lessen it..! As far as a natural, safe alternative is concerned, Mindfulness Based Stress Reduction does a pretty good job. Mindfulness-based stress reduction (MBSR) offers an integrative approach by utilising techniques such as meditation, gentle yoga and mind-body exercises to help people cope with stress. The mind is known to be a factor in stress and stress-related disorders, and meditation has been shown to positively effect a range of autonomic physiological processes, such as lowering blood pressure and reducing overall arousal and emotional reactivity.  

It is a way of connecting in to the body and becoming present with your current experience, by lying on one's back and focusing one's attention on various regions of the body, starting with the toes and moving up slowly to the top of the head. By taking your focus away from your thoughts, and towards your body, your attention is taken away from the thinking processes which are currently causing you distress.  It simply starts with just coming back to your breath.  This is the fastest, quickest way to become present. 

In Layman's terms, it is simply, "Moment-to-moment, non judgemental awareness [of yourself." Jon Kabat-Zinn.  A way of tuning in..a way of moving from your Headmind to your Bodymind (I explain more about this in another Post!) and just the simple act of observation of what is happening.  It can be extremely peaceful and nourishing.  

Even though I'm at the stage in my health where I don't really need to practice Mindfulness anymore, I still do on a daily basis, because it helps keep me grounded, whilst also keeping things in perspective, and reducing overwhelm which can be triggered by 'over-stress.'  

A Bit too Spiritual For Me?  

MBSR is in fact not Spiritual at all.  Although its roots are grounded in spiritual practice, the program is in fact secular, and should be approached as so. 

'Mindfulness-based approaches have been the subject of increasing research interest: 52 papers were published in 2003, rising to 477 by 2012.[1] Nearly 100 randomized controlled trials had published by early 2014.' Hurley, Dan (January 14, 2014). "Breathing In vs. Spacing Out" . New York Times Magazine. Retrieved April 9, 2014.

For Sufferers of Chronic Pain?

When I was first diagnosed, I was in a lot of physical joint and muscle pain...every single day. It was relentless.  The only thing I found which gave me some relief from my symptoms at the time was doing some Mindfulness-Based Stress Relief, usually for around 20 minutes a day.  I suppose you could say it was my first window to recovery.  It was then that I started exploring nutrition and psychology, which is where the majority of my recovery lay.  Mindfulness or Meditation is not a cure, but it certainly helps soften pain, and acts as a good lubricant to make change a possibility in your life.  

On a final note, for Fibro sufferers..."MBSR might be beneficial for people with fibromyalgia: there is no evidence of long-term benefit but low-quality evidence of a small short-term benefit." Lauche R, Cramer H, Dobos G, Langhorst J, Schmidt S (December 2013). "A systematic review and meta-analysis of mindfulness-based stress reduction for the fibromyalgia syndrome". J Psychosom Res (Systematic review) 75 (6): 500–10

So...could this benefit me?

A good place to start is by assessing your own stress levels and how your managing them.  If you click on the link, you'll be taken to the BeMindful stress test.  

Additionally, if you're a bit of a bookworm, this could be the most useful book you ever buy!  

Did You Know that our Brain is in Fact Plastic

Taken From Here

“I saw people rewire their brains with their thoughts, to cure previously incurable obsessions and traumas.” Dr. Norman Doidge

In my last post I discussed the power of positive-thinking (or affirmations) and how this has a decisive impact on our physiology. A couple of you wanted to understand how this works.  Well, let me tell you.

It all comes down to Neuroplasticity, which is the brain's ability to reorganize & re-mould itself by forming new neural connections throughout life. Since its discovery, this has had stress reduction, well-being, & health groups, very interested.

Taken from Here

What does this mean for us - The Basics

The adult brain contains over 100 billion neurons, give or take a few. To put this into context, that matches the estimated number of galaxies in our whole universe. Given we only use a few thousand of these repeatedly every day, there are literally billions of unused neurons we which can utilise.  This gives us the incredible ability to create completely new personalities, observe different outcomes, and completely change our condition of living...as long as we make the conscious decision to do it. It blew my mind too..

The reason we feel the same emotions & experience the same outcomes day-in day-out, is because we're firing the same neural pathways over & over again, over & over again, over & over again. This is where we can get stuck in this loop of self-limiting thoughts or habits, which recharges the stress response we experience on a daily basis and effectively moulds our personal perception of reality. 

Dr Caroline Leaf, estimates that "87% to 95% of the illnesses that plague us today are a direct result of our thought life. What we think about affects us physically and emotionally. It’s an epidemic of toxic emotions…"  

Consistent affirmations (said in a congruent way) is just one way of breaking that loop, by using new neurons in our brain to observe a different outcome, & to positively affect your physiology & mindset. Dr. Joe Dispenza, Neuroscientist, speaker on What The Bleep Do We Know, and a bit of a hero, claims "The one thing I noticed about people who had changes in health had changed their thinking...Our thoughts have a direct connection to our direct level of health."

To conclude

I'm not saying that using our infinitely powerful brains will cure all our physical difficulties, but by learning the discourse of stress symptoms and illness we can discover what is being suppressed or ignored in our emotions, and how this is influencing our health & well-being. From this viewpoint we can observe a clear two-way communication going on between our body and mind that affects our physical, mental & emotional state. 

Affirmations (some good ones are listed in my last post) & meditation are both ways that help us deepen this understanding.  So be more kind to yourself and try using some affirmations, you may find it works wonders!  I've attached a great little bonus tutorial for you on Neuroplasticity, which really gives you the low-down on this truly fascinating phenomenon :

Next time I'll be looking deeper into how emotions effect us and how we can affect them.  

Over & Out,

Adam